Vietnam doctors diagnose country’s 1st confirmed case of rare ‘stone man syndrome’
Vietnam News 11:08 24/06/2026Doctors at City Children’s Hospital (CCH) in Ho Chi Minh City have diagnosed Vietnam’s first confirmed case of Fibrodysplasia Ossificans Progressiva (FOP), an ultra-rare genetic disorder often referred to as ‘stone man syndrome,’ after a more than two-year effort to identify the cause of a 12-year-old girl’s progressive loss of mobility.
Around 6mn Vietnamese live with rare diseases, diagnosis takes 7 years on average
Vietnam News 15:58 01/03/2026In Vietnam, an estimated 6 million people live with rare diseases, but diagnosis takes an average of seven years, leaving many children to die because of late detection or lack of access to appropriate treatment.
6 million Vietnamese affected by rare diseases, health ministry launches action plan
Vietnam News 15:19 17/09/2025One in every 15 Vietnamese suffers from a rare disease, totaling around six million people, yet diagnosis and treatment remain limited and costly, health experts said at a scientific symposium in Hanoi on Tuesday.
Ho Chi Minh City siblings found with world’s first reported gene mutation that causes random lumps
Vietnam News 17:18 09/03/2022This gene mutation has never been reported in the world
